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Charity Summary

Charity Details

Cystic Fibrosis Association of New Zealand
Cystic Fibrosis New Zealand
Name change history
Name Effective Date
Cystic Fibrosis Association of NZ 15/05/2007
Cystic Fibrosis Association of New Zealand 15/11/2017

Registration details

June 30

Address for service

PO Box 110067
Auckland Hospital
79 Grafton Road

Charity's other details

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Purpose & Structure

Charitable Purpose

To promote and provide for the welfare and assistance of all persons having Cystic Fibrosis and for the welfare and assistance of families, guardians and caregivers of such persons in such a manner of CFNZ may from time to time determine.To initiate, encourage and participate in research into the problems peculiar to CF, including research toward better treatment and understanding and research toward a cure.To assist in providing support for persons with CF to enable them to receive as far as possible, the most desirable treatments and assessments.To provide advice to members on ensuring the individuals have access to special equipment required for treatment of Cystic Fibrosis.To publicise, procure and distribute literature on CF.To co-operate of affiliate with anybody having purpose similar to CFNZ. To conduct any other business or engage in any other activities which are seen to be advantageous to purposes of CFNZ pursuant to its charitable and done status.

Note: The main sectors, activities and beneficiaries are bolded.

Provides services (e.g. care / counselling)

Makes grants / loans to individuals, Sponsors / undertakes research, Provides advice / information / advocacy


Education / training / research, Social services, Sport / recreation, Fund-raising, People with disabilities

Other (please state)

(All people with Cystic Fibrosis)

Entity Structure

CFNZ comprises of an elected board, 12 ordinary members (Branches) and a small team of staff led by a Chief executive.The board consists of six representatives, including one adult with Cystic Fibrosis( vacant for the year) The Organisation has 12 branches who support people with Cystic Fibrosis in their local communities across New Zealand. CFNZ employs a Chief Executive, three Field Workers(Auckland, Wellington and Christcurch) a National Information Officer, a Grants Co-ordinator, a Project

Entities your charity controls

Name CC Registration Number
The Shares in Life Trust (Foundation) CC21293

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Due Date Date Submitted Total Income Total Expenditure Financial Statements Annual Return Summary
31/12/2018 - - - - To be filed
31/03/2018 17/04/2018 $1,339,434 $1,403,283
31/12/2016 23/06/2017 $1,376,975 $1,348,257
31/12/2015 15/12/2015 $704,227 $795,018
31/12/2014 15/10/2014 $749,380 $761,019
31/12/2013 18/09/2013 $556,229 $548,349
31/12/2012 5/11/2012 $574,462 $592,325
31/12/2011 19/09/2011 $564,638 $584,279
31/12/2010 21/09/2010 $833,311 $815,145
31/08/2009 2/06/2009 $535,104 $623,352

Officer Details


Officer Name Position Effective Date
Ed Campion Board Member 24/09/2017
Michele Wilson Board Member 24/09/2017
Mark Passey Adult Representative 22/09/2017
Catherine Anne Rusby Board Member 1/05/2017
Denis Scott Currie President 1/05/2017
Warwick McLeod Murray Board Member 29/10/2016
Jane Bollard Chief Executive 7/03/2016
Jane Drumm Chairperson 15/02/2007

Past Officers

Officer Name Position Past Since
Kim McGuinness Board Member 24/09/2017
Lisa Marie Borkus Board member (CF Advisory Group) 24/09/2017
Cheryl Moffat Board Member 18/05/2017
John Parsons Board member 29/10/2016
Maragret Nicholls Board Member 29/10/2016
Belinda Burnett Chief Executive 29/01/2016
John Elliott Board Member 21/09/2014
Robyn Somerville Board Member 21/09/2014
Catherine Russell Chief Executive 11/04/2014
Lisa Borkus Board Member 14/09/2013

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.
Date Created Reference View Summary (.pdf <1MB)
3/06/2016 NOC014
19/05/2016 NOC013
10/03/2015 NOC011
16/09/2014 NOC010
18/09/2013 AR007
6/10/2010 NOC004
28/10/2009 NOC003
2/06/2009 AR003
2/06/2009 NOC002
27/05/2008 AR002

Charity Documents