To promote and provide for the welfare and assistance of all persons having Cystic Fibrosis and for the welfare and assistance of families, guardians and caregivers of such persons in such a manner of CFNZ may from time to time determine.To initiate, encourage and participate in research into the problems peculiar to CF, including research toward better treatment and understanding and research toward a cure.To assist in providing support for persons with CF to enable them to receive as far as possible, the most desirable treatments and assessments.To provide advice to members on ensuring the individuals have access to special equipment required for treatment of Cystic Fibrosis.To publicise, procure and distribute literature on CF.To co-operate of affiliate with anybody having purpose similar to CFNZ. To conduct any other business or engage in any other activities which are seen to be advantageous to purposes of CFNZ pursuant to its charitable and done status.
Note: The main sectors, activities and beneficiaries are bolded.
Provides services (e.g. care / counselling)
Makes grants / loans to individuals, Sponsors / undertakes research, Provides advice / information / advocacy
Education / training / research, Social services, Sport / recreation, Fund-raising, People with disabilities
Other (please state)
(All people with Cystic Fibrosis)
CFNZ comprises of an elected board, 12 ordinary members (Branches) and a small team of staff led by a Chief executive.The board consists of six representatives, including one adult with Cystic Fibrosis( vacant for the year) The Organisation has 12 branches who support people with Cystic Fibrosis in their local communities across New Zealand. CFNZ employs a Chief Executive, three Field Workers(Auckland, Wellington and Christcurch) a National Information Officer, a Grants Co-ordinator, a Project
Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.